Went to the Dr.s again today. The leg is looking better, but there is still a spot that won't drain. He said to give it a week and come back. I cant get into the oncologist till my leg is completely healed. This meant we had to cancel my moms tickets since its unlikely I will start the treatments too much before Thanksgiving.
I was really sad about how things are shaking down earlier today. Its hard to have no control! But tonight is the first night since Sunday I don't have a fever, so I'm feeling very happy. I have a long to do list that I can get started. It will feel so good to do something.
I have to tell you about a boy I saw on the news a couple years ago. His name was Mattie Stepanek. He was maybe 10 or 11 and had been suffering from a rare form of muscular dystrophy which killed his siblings. He was in a wheel chair, breathing with a trach tube-but he was so brilliant, and happy. Anyway he said something that I loved then, and that I need now.
When asked "Do you ever get angry or scared about your disease or dying?" He says, "I never question God. I might say, "Why me?" But then I say, "Why not me? Better me than a little baby, or a kid who doesn't have strength or support."
10 comments:
Alisa I am so sorry i can tell that your mother is so disappointed to not be coming.However there is a reason and we have to believe in Gods timetable. You are loved and being prayed for love Suzanne
you go girl! I love the attitude! What is the best day next week to bring dinner. You can answer on my blog or email me or call. Any source of communication will do.
I'm so glad you are feeling better. Everything will work out, I know it will!
Mattie's outlook is absolutely inspiring, and so it yours, Alisa. Sorry mom isn't coming yet.
I remember seeing that little Mattie on a few different shows (Today Show, Oprah, etc.) He touched so many people with his spirit and love. You are doing the same. Thank you!
Alisa - I am sorry for your trials, but I know you are up to it and will get through. Call me when you start the treatments (or before). I'm nearly half done. We can compare symptoms like a couple of grumpy old men (well, one of us is) :) Seriously, I would like to help in any way I can. Call or e-mail anytime. Thinking of you and your family.(firstname.lastname@hksystmes.com)
Alisa, can we get you an appointment to be on Oprah? She gets mentioned enough on this blog that she ought to give you something for the advertising. I hope it all goes well. We're of course praying for you.
Alisa..
of ALL the people who post, Iamthewalrus is the ONLY one who truly knows what you are about to experience. His concern for you is very touching to me...and I know it is to you, also.
I can talk about being the caregiver of the grumpy old man, and he can tell you about BEING the grumpy old man. You know where we are...let us help too.
Love you! Buffy
Cute little kid! He's so humble! I loved being with you yesterday. Sorry I was a bit of a weakling. I may stop by your house on my way to SLC tomorrow to get my cam if that's ok. I'll call. xoxo
I have to agree with the Oprah idea.
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